I've tried and continue to try healing through diet and exercise. It helps a bit with the swelling, but the skin issues are still rough. I'm going through diff drugs now to try to find out my best option, but I don't think it'll work without the drugs. Fuck this body.
>Fuck this body.
\+1 ... One day, robot bodies!
Also, what diet did you find most effective and what sort of exercise do you do? I can't run. Riding my bike is still ok. Swimming was great but I don't know how to swim and I have the embarrassment of psoriasis.
I can't run either, but I can bike. I haven't been able to lift lately since my hands don't have skin, but lifting helped the inflammation before I had this flair. I focus mostly on avoiding sugars, simple carbs, and alcohol. Once I get to feeling better, I'll be doing a weight routine again. Good luck to you.
Suppressing your immune system is not exactly a *healthy* thing to do, but letting this disease go unchecked is far worse. You were dealt a hand, now you make the best play with the cards you have at your disposal. It's like chemo for a cancer patient.
If the natural approach is appealing to you, talk to your doctor about it and give it a whirl. I've tried a few dietary changes, but Cosentyx and Advil is the best approach for me thus far.
The suppressive effect is really mild. Especially when you are talking biologic drugs that only target very very specific functions. The suppressive effect is massively overplayed. It is not unhealthy.
Hello -just chiming in. Recently diagnosed with PsA but has symptoms for about 4 years.
While waiting for my initial rheumatologist appointment and in considerable pain - I went on a low carb , zero processed food diet and it fixed a lot. When I got to the rheumatologist she put me on methotrexate anyway as I still have inflammation in my blood work and dactylitis in my toes ..and I basically couldn’t tolerate it so stopped.
I started seeing a naturopath and am trying an autoimmune paleo diet with curcumin supplement to see how close I can get to remission naturally.. the medications I know will be a necessity at some point, but they scare me as I’m only 32 and know it will be a lifetime.
Deciding between the pros and cons of the meds is a hard choice..
For me though- processed carbs are a HUGE trigger. Now I’ll find out if removal of dairy/eggs/nuts help.
>the medications I know will be a necessity at some point, but they scare me as I’m only 32 and know it will be a lifetime.
Exactly
And thanks, trying to avoid carbs as well. Not easy with the kids bringing back buckets of Halloween candy :P
Right?! That’s been a hard one for me too. I’ve been evolving my “diet” for nearly 6 months now with a methotrexate blip in the middle.. I’m hoping this AIP is the ticket .. at least to see how far I get. Good luck!
I've tried several things and find this pill from Costco to work fairly well. I've had no flare ups since starting it about 4 months ago. Correlation does not equal causation and all that, but maybe worth a try. My disease has been on the mild side to begin with though.
https://www.costco.ca/webber-naturals%C2%AE-Osteo-Joint-Ease%E2%84%A2-with-InflamEase%E2%84%A2----2-x-180-Caplets.product.10331610.html
MSM can’t work for immunological inflammation. It biologically can’t.
And you can buy 5KG of MSM for less than that single box if you buy it raw in bulk. We give it to our horses - we buy kilos of it year round. It can help osteo joint pain but not immunological inflammation.
It has a bunch of crap on it though. I'm not a big believer in pseudo science, but this is all in taking and it's been 6 months since my last flare. Maybe due to some other reason, but none I'm aware of.
Exercise exercise exercise.
No it doesn’t replace drugs - it complements them and both work in synergy. Diet is what it is but exercise really is the best way to help yourself. Any Rheumatologist will tell you this.
No matter how bad your day to day symptoms are you (note, that’s day to day symptoms NOT flare up symptoms) can still exercise as you can exercise around most things.
You’ve got to move to keep moving.
Can you clarify what the day to day symptoms are vs. flare up symptoms? I just had what my doctor thinks is my first flare up. It’s been two months with it. What would a normal day feel like to most ( I know everyone is different) but I’d like an idea how to tell what’s a flare and what’s a new normal.
You'll get a lot of flack from people on this sub and r/psoriasis but there are tons of people that swear by the AIP(autoimmune protocol) diet. It's extremely restrictive and rigorous but for some of us we don't have much left to lose. It's also in no way less healthy than any kind of long term meds. Worth a shot even for a couple months if you can buckle down and stick to it.
[https://chriskresser.com/5-steps-to-personalizing-your-autoimmune-paleo-protocol/](https://chriskresser.com/5-steps-to-personalizing-your-autoimmune-paleo-protocol/)
Again, it's difficult but ultimately there is nothing to lose by giving it a shot. Either it helps or it doesn't. At the very least it might give you some identifiable foods that make things worse.
I've tried and continue to try healing through diet and exercise. It helps a bit with the swelling, but the skin issues are still rough. I'm going through diff drugs now to try to find out my best option, but I don't think it'll work without the drugs. Fuck this body.
>Fuck this body. \+1 ... One day, robot bodies! Also, what diet did you find most effective and what sort of exercise do you do? I can't run. Riding my bike is still ok. Swimming was great but I don't know how to swim and I have the embarrassment of psoriasis.
I can't run either, but I can bike. I haven't been able to lift lately since my hands don't have skin, but lifting helped the inflammation before I had this flair. I focus mostly on avoiding sugars, simple carbs, and alcohol. Once I get to feeling better, I'll be doing a weight routine again. Good luck to you.
Also, I consume quite a bit of THC and CBD.
I would actually give that a shot but it's still illegal where I live :( I've tried CBD in pill form but doesn't work.
Suppressing your immune system is not exactly a *healthy* thing to do, but letting this disease go unchecked is far worse. You were dealt a hand, now you make the best play with the cards you have at your disposal. It's like chemo for a cancer patient. If the natural approach is appealing to you, talk to your doctor about it and give it a whirl. I've tried a few dietary changes, but Cosentyx and Advil is the best approach for me thus far.
The suppressive effect is really mild. Especially when you are talking biologic drugs that only target very very specific functions. The suppressive effect is massively overplayed. It is not unhealthy.
[удалено]
The Aleve doesn't tear your gut up?
Hello -just chiming in. Recently diagnosed with PsA but has symptoms for about 4 years. While waiting for my initial rheumatologist appointment and in considerable pain - I went on a low carb , zero processed food diet and it fixed a lot. When I got to the rheumatologist she put me on methotrexate anyway as I still have inflammation in my blood work and dactylitis in my toes ..and I basically couldn’t tolerate it so stopped. I started seeing a naturopath and am trying an autoimmune paleo diet with curcumin supplement to see how close I can get to remission naturally.. the medications I know will be a necessity at some point, but they scare me as I’m only 32 and know it will be a lifetime. Deciding between the pros and cons of the meds is a hard choice.. For me though- processed carbs are a HUGE trigger. Now I’ll find out if removal of dairy/eggs/nuts help.
>the medications I know will be a necessity at some point, but they scare me as I’m only 32 and know it will be a lifetime. Exactly And thanks, trying to avoid carbs as well. Not easy with the kids bringing back buckets of Halloween candy :P
Right?! That’s been a hard one for me too. I’ve been evolving my “diet” for nearly 6 months now with a methotrexate blip in the middle.. I’m hoping this AIP is the ticket .. at least to see how far I get. Good luck!
Did it help?
I've tried several things and find this pill from Costco to work fairly well. I've had no flare ups since starting it about 4 months ago. Correlation does not equal causation and all that, but maybe worth a try. My disease has been on the mild side to begin with though. https://www.costco.ca/webber-naturals%C2%AE-Osteo-Joint-Ease%E2%84%A2-with-InflamEase%E2%84%A2----2-x-180-Caplets.product.10331610.html
Man they make a killing off this stuff. Thanks, I will definitely give it some thought and research.
MSM can’t work for immunological inflammation. It biologically can’t. And you can buy 5KG of MSM for less than that single box if you buy it raw in bulk. We give it to our horses - we buy kilos of it year round. It can help osteo joint pain but not immunological inflammation.
It has a bunch of crap on it though. I'm not a big believer in pseudo science, but this is all in taking and it's been 6 months since my last flare. Maybe due to some other reason, but none I'm aware of.
Exercise exercise exercise. No it doesn’t replace drugs - it complements them and both work in synergy. Diet is what it is but exercise really is the best way to help yourself. Any Rheumatologist will tell you this. No matter how bad your day to day symptoms are you (note, that’s day to day symptoms NOT flare up symptoms) can still exercise as you can exercise around most things. You’ve got to move to keep moving.
Your comment is timely. I went for a mountain bike ride yesterday and felt so much better after. You're right, I need to keep it up.
Can you clarify what the day to day symptoms are vs. flare up symptoms? I just had what my doctor thinks is my first flare up. It’s been two months with it. What would a normal day feel like to most ( I know everyone is different) but I’d like an idea how to tell what’s a flare and what’s a new normal.
You'll get a lot of flack from people on this sub and r/psoriasis but there are tons of people that swear by the AIP(autoimmune protocol) diet. It's extremely restrictive and rigorous but for some of us we don't have much left to lose. It's also in no way less healthy than any kind of long term meds. Worth a shot even for a couple months if you can buckle down and stick to it.
Thanks, I'm going to start googling but any helpful links you can recommend?
[https://chriskresser.com/5-steps-to-personalizing-your-autoimmune-paleo-protocol/](https://chriskresser.com/5-steps-to-personalizing-your-autoimmune-paleo-protocol/) Again, it's difficult but ultimately there is nothing to lose by giving it a shot. Either it helps or it doesn't. At the very least it might give you some identifiable foods that make things worse.
No problem, I know there's no magic pill or diet.
Do you have an update on how you went with the diet change?
I could never stick to the diet, but I don't take any medication for it currently.