Yes I have. Iām in a flare currently and within past 6 months restricted my diet to exclude things that aggravate my body. Itās been incredibly difficult to not fall back into my ED with my new diet and weight loss. I have a good support system in the house that is keeping me on top of my health and have been leaning heavily on them.
Iāve been thinking about this a lot and am glad you said something, your struggle is totally felt.
I so relate to this. Thatās another thing Iāve struggled with too. I finally got to a point in my life where I felt I could eat anything I wanted and I wasnāt scared to eat any kind of foods anymore and then boom I get UC and have to cut out a bunch of foods that my body just doesnāt agree with š¤¦š¼āāļøit is so hard not to fall back into old habits. Iām sending you good vibes!
yes ED's are very common with uc patients. a lot of people with uc avoid eating when possible because it causes them a lot of pain. a lot of people here are upset they gained 20 lbs, but I'm wondering if that's 20 lbs over their healthy weight or their uc weight.
uc caused me to lose 20 lbs, and once i finally got into remission i gained it all back and a tiny bit more. so i really only gained 1-2 lbs from remission to remission.
I struggled with an eating disorder in hs for three years and I was two months into recovery when my first flare happened so Iāve always believed it was connected
And itās like once I started unintentionally losing weight because of uc, my brain immediately was like āok but what if I also restrict/fast?ā And instead of being concerned I started falling back into old habits and I had to be super mindful of it
Yes I lost about 25 lbs during a recent flare. I struggled with an eating disorder in my teens and have always been obsessive with my weight. I used to love comments about my weight loss and how skinny I was at that time. During my flare, I started receiving a lot of those ācomplimentsā again which was extremely triggering. It made me feel like I had to be sick in order for people to think I look good. Once I got put on the right medication I started gaining weight and have been really struggling with accepting my body at a healthy weight. I try to remind myself that the quality of life I had in a flare or in the height of my ED is NOT worth it, and if I have to be sick to look that way itās not the way my body was meant to be.
yes! i lost 25 lbs in a month, and was already thin so i looked pretty emaciated...triggered my decades old eating disorder big time. luckily i'm on meds now that caused some weight gain and that seems to have dampened the urge to restrict/get smaller and smaller, but i do wonder what will happen if/when i have another flare.
it might be a good idea - of course it doesnāt solve everything (far from it) but it can be really valuable to have someone else who fully knows whatās going on and cares about your health and to whom youāre kind of accountable. maybe friends/family could fill that role, but they didnāt for me. anyway, i hope this stuff gets easier for you, that you get into UC remission and it stops being such a trigger. itās a rough combination of illnesses, at times i felt like fate was laughing at me a bit.
Absolutely! Struggled with an ED all though middle school/junior high and every time Iām in a flare itās extremely triggering. Especially because I typically vomit when Iām in flares so it feels super dangerous. And the weight gain from steroids along with rapid weight loss pendulum are also extremely triggering. I have to make sure I see my therapist regularly so I donāt get back into old habits.
I have, my old ed behaviors came back ehrn I started flaring and had to restrict food. I always connect the two together, and honestly, I feel like my ed got worse, bcs of uc and having to watch my diet.
Yes. When I was diagnosed with Crohnās at 15 I had severe chronic constipation and was reliant on laxatives for a while. The pandemic hit and I developed an exercise addiction, started restricting food, and began abusing laxatives since they were already accessible and I was home every day. That same year I ended up having the opposite symptoms- severe diarrhea and started seeing blood in my stool. When they did my colonoscopy the lining of my colon was black which I assumed was from the laxatives. I always said it was because of my IBD-C history and not an eating disorder because I didnāt want people to think I ādid it to myself.ā Although there is minimal research that laxative abuse can cause IBD I always wondered how much it contributed to my symptoms.
Currently out of a flare (i think, the pain has mostly subsided alongside the nausea) but i'm pretty emaciated now, and i have a hard time eating still. I avoid eating alot of dishes and products because i fear the pain might come back, so my meals are pretty bland. I am trying to eat as much as i can in a day since i need to get weight up.
I don't know if it's considered ED though since i do crave junkfood every once in a while
Not trying to make light of shitty situations but by the title I thought it meant erectile type of Ed, I felt so seen for two seconds š
Lol I honestly figured that was going to happen haha
Same I can never read that as anything other than erectile dysfunction
Same. Came here to comment and then read the text. Iām just going to quietly leaveā¦.
What else could they be talking about? ED is erectile disfunction. If you taking about something else then name it before shortening it.
Oh yes I was early in my recovery when I got hit with a my first flare and it took me so many steps back
Yikes that sounds rough. Hope youāre doing okay now
Still struggling with it since Iāve been put on a diet due to UC but itās gotten a bit better.
Yes I have. Iām in a flare currently and within past 6 months restricted my diet to exclude things that aggravate my body. Itās been incredibly difficult to not fall back into my ED with my new diet and weight loss. I have a good support system in the house that is keeping me on top of my health and have been leaning heavily on them. Iāve been thinking about this a lot and am glad you said something, your struggle is totally felt.
I so relate to this. Thatās another thing Iāve struggled with too. I finally got to a point in my life where I felt I could eat anything I wanted and I wasnāt scared to eat any kind of foods anymore and then boom I get UC and have to cut out a bunch of foods that my body just doesnāt agree with š¤¦š¼āāļøit is so hard not to fall back into old habits. Iām sending you good vibes!
yes ED's are very common with uc patients. a lot of people with uc avoid eating when possible because it causes them a lot of pain. a lot of people here are upset they gained 20 lbs, but I'm wondering if that's 20 lbs over their healthy weight or their uc weight. uc caused me to lose 20 lbs, and once i finally got into remission i gained it all back and a tiny bit more. so i really only gained 1-2 lbs from remission to remission.
I struggled with an eating disorder in hs for three years and I was two months into recovery when my first flare happened so Iāve always believed it was connected And itās like once I started unintentionally losing weight because of uc, my brain immediately was like āok but what if I also restrict/fast?ā And instead of being concerned I started falling back into old habits and I had to be super mindful of it
Yes I lost about 25 lbs during a recent flare. I struggled with an eating disorder in my teens and have always been obsessive with my weight. I used to love comments about my weight loss and how skinny I was at that time. During my flare, I started receiving a lot of those ācomplimentsā again which was extremely triggering. It made me feel like I had to be sick in order for people to think I look good. Once I got put on the right medication I started gaining weight and have been really struggling with accepting my body at a healthy weight. I try to remind myself that the quality of life I had in a flare or in the height of my ED is NOT worth it, and if I have to be sick to look that way itās not the way my body was meant to be.
I'm almost to the weight I was at my worst ED just from the colitis. I wonder often if it's been a factor in the progress.
Yep. And when I get really thin from a flare I do have a voice inside sorta celebrating. I donāt like that voice but sheās there. :(
yes! i lost 25 lbs in a month, and was already thin so i looked pretty emaciated...triggered my decades old eating disorder big time. luckily i'm on meds now that caused some weight gain and that seems to have dampened the urge to restrict/get smaller and smaller, but i do wonder what will happen if/when i have another flare.
yes, had a very similar experience, and things went downhill pretty quickly. do you have a therapist or someone you can talk to about it?
Not yet, Iāve been in therapy before and stopped going about 10 months ago but Iām starting to look into going again
it might be a good idea - of course it doesnāt solve everything (far from it) but it can be really valuable to have someone else who fully knows whatās going on and cares about your health and to whom youāre kind of accountable. maybe friends/family could fill that role, but they didnāt for me. anyway, i hope this stuff gets easier for you, that you get into UC remission and it stops being such a trigger. itās a rough combination of illnesses, at times i felt like fate was laughing at me a bit.
Absolutely! Struggled with an ED all though middle school/junior high and every time Iām in a flare itās extremely triggering. Especially because I typically vomit when Iām in flares so it feels super dangerous. And the weight gain from steroids along with rapid weight loss pendulum are also extremely triggering. I have to make sure I see my therapist regularly so I donāt get back into old habits.
I have, my old ed behaviors came back ehrn I started flaring and had to restrict food. I always connect the two together, and honestly, I feel like my ed got worse, bcs of uc and having to watch my diet.
I had/have binge eating disorder but now I have some form of anorexia or Arfid from this disease making eating so unappealing
Yes. When I was diagnosed with Crohnās at 15 I had severe chronic constipation and was reliant on laxatives for a while. The pandemic hit and I developed an exercise addiction, started restricting food, and began abusing laxatives since they were already accessible and I was home every day. That same year I ended up having the opposite symptoms- severe diarrhea and started seeing blood in my stool. When they did my colonoscopy the lining of my colon was black which I assumed was from the laxatives. I always said it was because of my IBD-C history and not an eating disorder because I didnāt want people to think I ādid it to myself.ā Although there is minimal research that laxative abuse can cause IBD I always wondered how much it contributed to my symptoms.
Yes, I have
Currently out of a flare (i think, the pain has mostly subsided alongside the nausea) but i'm pretty emaciated now, and i have a hard time eating still. I avoid eating alot of dishes and products because i fear the pain might come back, so my meals are pretty bland. I am trying to eat as much as i can in a day since i need to get weight up. I don't know if it's considered ED though since i do crave junkfood every once in a while
[ŃŠ“Š°Š»ŠµŠ½Š¾]
sry im from europe I lost 33 lbs