You should be thankful! This is the state our NHS is in right now. An earlier diagnosis could've saved me a lot of pain and struggle in life, if I do in fact have adhd. Guess I'll know in a few years
i was 3 when i got diagnosed, meanwhile u have to wait 4 years for the chance ðŸ˜ðŸ’€
thats insane, and whos even gonna remember to show up in 4 yrs time??
It's not like they tell you when your appointment is.
You drop your application and wait.
All you know is estimated wait time.
It's been around 2,5 years since I decided to go with the NHS.
After a year i decided to go private, got diagnosed, went through the titration process all nice and all.
Now the NHS is refusing to accept my shared care agreement and my GP is taking time to send details (over 2 months now!) on why they refused when contacted by the complaints team!
This is my situation, been on for three years now, despite being a 2 year wait when I joined…
Fortunately I rang the doctors about the shared care situation before spending the money… it’s crazy
First thing I did before going private - asked them and was told they're more than happy to do shared care.
Apparently they changed their mind or something, idk.
Similar story in Germany.Â
Was told to go to specialist clinic. Neat! Perks of living in the capital. "Waiting list closed, please check again later." Okay.Â
Regularly checked a few weeks, months, years later: "Waiting list closed, please check again later."Â
Went to other places. "Check again next year. We might have free spots." Did so. "Sure, we got a spot in a few months!" Awesome! A few months later: "Sorry, we don't actually do diagnosis. You should check that specialist clinic!"Â
More months later, I just paid out of pocket. Got full test and diagnosis done. Now off to find long term treatment. Practically everywhere: "Sorry, no new patients."Â
Dude.Â
Here, it is very much a problem of politics. There's an organization who decide how many psychologists/psychotherapists/psychiatrists can bill public healthcare insurance. They have a very limited number of "seats." Opposite to this are a huge number of psych people who desperately want to work (and help people). But they have to either open/join private practices or pay huge sums to buy or inherit one of those rare "seats." Who the f is in charge of that organization, deciding on the number of seats? The conglomerate of health care insurance companies. Who obviously don't want to allow any more psych specialists to bill them. It's ridiculous.
This is insane. If you can afford it, it might be worth traveling. NHS may not pay for care abroad, but a diagnosis without insurance shouldn't be more than a couple hundred USD at worst.
Took 4-5 years for me to get an appointment to see if i have adhd or autism and anything of the sort and i have a 45 min appt and instantly i was diagnosed with autsim adhd and dyspraxia this was a couple years ago i know the nhs is struggling so it might take longer now or others.
My mom has ADHD, so she actually just wanted to know if I had it too. Same thing for my brother... Which gave... Less fortunate results... Like autism + ADHD + Intelligence deficiency (now diagnosed with this a year ago) and more.
I'm glad I ONLY have ADHD.
I am on the waiting list for 3 years now and they just sent me a letter that I'll have to wait a bit longer.
Meanwhile I lost 2 jobs and can't find a new one :(
If you’re in England please look into the ‘right to choose scheme’, in a nutshell it means that you have to be given an appointment within a certain number of weeks otherwise you choose a third party that has an NHS contract (I highly recommend ‘Healios’.)
I didn’t use the right to choose scheme, I only found out about it recently, I had been on the waiting list for 3 years and I received a letter from the NHS saying I could either wait another 2 years to be assessed by them or they could pass me to a third party.
I was assessed by ‘Healios’, they have an NHS contract (which is why I was passed to them) and can be chosen using the right to choose scheme.
I was uncomfortable at the thought of an online assessment, especially after reading that some online assessments only took an hour. However my assessment with Healios was broken into 2 parts each lasting over an hour (about 90 minutes.) They sent some things to fill out before hand from myself, my parents and my school (place of work if the school isn’t an option.) It felt very thorough and thankfully the person who conducted my assessment was a psychologist with experience in assessing ADHD (as current guidance says ‘any qualified person’ can assess ADHD, personally I’m uncomfortable with that.)
try travel to any country that doesn't have waiting list for months or years
for example, my uncle who lives in Denmark had an appointment with the doctor that took him 4 months while when he came to visit my country it took only a few hours waiting
What happens when you go back to your home country and tell them some doctor in another country diagnosed you with ADHD so they gotta give you meds now?
Would they actually take it as a valid diagnosis, cos that doesn't seem super likely tbh.
sorry I didn't clarify the topic
my uncle was having some pain in his back so it didn't took him long to check the doc
however
for the adhd it depends on the doc himself
some will only take one month appointment
and some will take less or more time
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The catch there is that, if you go private, you have to either stay private or be referred to the NHS so your prescription's cheaper (or free if you're in Wales (or Scotland?)).
GPs across the UK are now refusing shared care agreements (unless you're lucky), and RtC is only for England. So I'm now stuck on the NHS waiting list while still having to pay private prices for meds ðŸ˜
I live in Wales so those are my only options. It sucks 😞
Lib dems are a joke. It will stop the bleeding. Tory budgets are a cynical fantasy; just Faragist lies. NHS is crumbling bc the govt won’t fund it properly that’s the only reason. If people refuse to invest in social programs there will be no more programs that are wildly popular for a reason.
Starmer has been making pretty consistent noises about mental health being a priority and that he will actually fund it more rather than just talking about it.
We'll see, but I'm cautiously optimistic that things will get somewhat better in the medium term.
I've been on a waiting list for 3 years so far in the USA. No sign of actually seeing someone any time soon, but when I finally do, I get to pay a shitload of money for the "privilege."
lol no reason to lie. My spouse was diagnosed and given medication within two months and had the option to go through a few different ADHD medications. Her ADHD medication is about $90 a month which is on the high end of medication but beats waiting years. For comparison she takes about three other prescriptions and I take one prescription and the rest of our medication is around $40 total so we pay around $130 for all of our prescriptions a month.
I’ve never met anyone here in the US waiting years for ADHD medication even for the name brand.
Just because you think the US healthcare sucks doesn’t mean you have to spread false information about it.
I'm glad it worked out for your spouse, but that does not make their experience universal. I live in a small town with very limited Healthcare options, and I have been on a waiting list to see a psychiatrist since August of 2021. If I were willing to travel several several hours to a major city, maybe I could get in sooner, but that's not really an option for me.
Go to psychiatrist for testing one time and after that you can do virtual appointments, after that you might get the option to have the prescription mailed but I wouldn’t see why a pharmacy wouldn’t have it. It isn’t that hard to make one trip to a psychiatrist. There’s a lot of options available to you.
You also have a post made 70 days ago saying you live in upstate New York. Not sure how small of a town that is but I’m sure there’s something there for you.
In Italy it's 1 year.
If they don't lose your certified email when transferring you, as they did with me, which added 8 months to it.
Then they went on holiday and postponed my second appointment.
Then they went in sick leave, and postponed my third.
Then they went on holiday, and postponed my 4th.
Then they kept my diagnosis hostage untill I got certified for not having any other learning disability (they will try to blame your symptoms on anything else). this I did privately because the waiting time was 13 months.
Then they went into sick leave.
I'm currently hoping to hear from them
As for why they kept me hostage and refused the diagnosis, my psych invented a probable dyscalculia, despite being expressly told that math and stem were the only things I DIDN'T have trouble in. Apparently not showing hyperactivity in childhood was just such an unusual never seen before case she couldn't belive it was just adhd.
I got a referral from my GP for testing yesterday, and when I called the mental health clinic, they have no appointments, live or virtual, anywhere at anytime.
Luckily, my job has a mental health access program and I was able to get an in-person appointment for tomorrow evening.
Oh really? I'm curious to know how that process goes as GPs here wouldn't be specialised in mental health to be able to pass a diagnosis. Here all they can do is a 'pre-screening' test, and if you hit the right markers you're then referred to a psychiatrist
yeah, so if its a simple case and you're an adult, a family doctor can handle it here. I've got no other psychological or neurological issues (that I know of lol), and the test he gave me came back very clearly indicating that I have ADHD.
The test was a big stack of forms to take home and fill out. I did almost all of it the day I got them, and then procrastinated for 3 months or so with the last 2 pages. When I did finally turn it in, I returned the forms out of order. He considered that a point in favor of me having ADHD lol.
Also Canadian here. It varies like hell. I live on the West Coast, and I'm on a 2 year waiting list. My family doctor doesn't diagnose ADHD and there's only 1 adult clinic in the entire province. I wish I got diagnosed as a kid so bad
I was so problematic I got diagnosed at 12 and it was through teacher referral. For some reason my experience with the NHS has always been substantially better than others
Your post/comment has been removed because it either contains, or is advocating for, misinformation.
Betterhelp is a scam. They do not vet their therapists, overwork/underpay the ones they do hire, support the genocide in Palestine, and have sold users medical data to advertiser's including whether they would be susceptible to advertising for mental health related subjects.
Same. I should have tried to see one when I first thought I had it 3 years ago, but my parents told me I didn't have ADHD smh.
Is there even a point in seeing one now?
My parents say I'm a hypochondriac because I think I've got it. Don't listen to them an get a diagnosis. At least then you can either get medication or therapy that will help you live the rest of your life if you do have it
Yeah good point. I think I've got it too, even though I haven't been properly diagnosed
If I do have ADHD then I finally know what's been ruining my life lol
I didn't know you need to go to a special place for it. I went to my psychiatrist, told her I think I have ADHD and she did an interview with me and my mother and she diagnosed me immidiately lol
In the exact same situation. I feel you. Had i not been made redundant in September of last year i'd have gone private by now even though i resent the need and the cost (i was maybe 2 or 3 months away from having a comfortable enough buffer to drop the £1500). I just want to move forward. But then whenever it is i can get a job i'll have to do other rebuilding first just to get back to zero.
Ugh yeah :/ I’m on the waiting list and it makes me feel pretty despondent at times that it’ll take years for me to get confirmation as to whether I actually do have ADHD and can get help for my symptoms with medication, or if I really am just some lazy person who’s just constantly ruining their own life.
can you go private? Can just speak for austria and germany but prices range from 100€ to 300€ - and you cut the waiting-time as this waiting time is the longest with psychologists and psychiatrists who work with general insurans(something like nhs), but the slots for working with public insurance are acutally rare (resulting in not enough public practicioners).
Already my first month on medication saved so much adhd-tax that it would have been worth it, instead of waiting years.
When I approached my doctor at uni I was told the local service was a 5-year waitlist (definitely not happening seeing as I was on a 3-year course that was about to end) so I opted for Right To Choose (with Psychiatry-UK).
A couple of blunders on my doctor's part and a year after getting added to the P-UK waitlist, I got diagnosed a few weeks ago over 2 sessions. Now we wait (potentially) another year to start titration because of the meds shortage but being diagnosed has taken a lot off of my shoulders.
I keep getting proven that I need to be thankful for my parents for getting me diagnosed at a young age cause WTF??? 4 YEARS!?!
You should be thankful! This is the state our NHS is in right now. An earlier diagnosis could've saved me a lot of pain and struggle in life, if I do in fact have adhd. Guess I'll know in a few years
i was 3 when i got diagnosed, meanwhile u have to wait 4 years for the chance ðŸ˜ðŸ’€ thats insane, and whos even gonna remember to show up in 4 yrs time??
Imagine missing my appointment and having to wait another 4 years ðŸ˜
It's not like they tell you when your appointment is. You drop your application and wait. All you know is estimated wait time. It's been around 2,5 years since I decided to go with the NHS. After a year i decided to go private, got diagnosed, went through the titration process all nice and all. Now the NHS is refusing to accept my shared care agreement and my GP is taking time to send details (over 2 months now!) on why they refused when contacted by the complaints team!
All the GP practices refuse a shared care agreement… all of them As far as they’re concerned, ADHD doesn’t exist in adults
The NHS in general operates on outdated systems and processes, not surprised their ideas are too.
This is my situation, been on for three years now, despite being a 2 year wait when I joined… Fortunately I rang the doctors about the shared care situation before spending the money… it’s crazy
First thing I did before going private - asked them and was told they're more than happy to do shared care. Apparently they changed their mind or something, idk.
Last time I tried to get diagnosed they literally told me they weren't offering the service "until further notice" 💀
Similar story in Germany. Was told to go to specialist clinic. Neat! Perks of living in the capital. "Waiting list closed, please check again later." Okay. Regularly checked a few weeks, months, years later: "Waiting list closed, please check again later." Went to other places. "Check again next year. We might have free spots." Did so. "Sure, we got a spot in a few months!" Awesome! A few months later: "Sorry, we don't actually do diagnosis. You should check that specialist clinic!" More months later, I just paid out of pocket. Got full test and diagnosis done. Now off to find long term treatment. Practically everywhere: "Sorry, no new patients." Dude. Here, it is very much a problem of politics. There's an organization who decide how many psychologists/psychotherapists/psychiatrists can bill public healthcare insurance. They have a very limited number of "seats." Opposite to this are a huge number of psych people who desperately want to work (and help people). But they have to either open/join private practices or pay huge sums to buy or inherit one of those rare "seats." Who the f is in charge of that organization, deciding on the number of seats? The conglomerate of health care insurance companies. Who obviously don't want to allow any more psych specialists to bill them. It's ridiculous.
Jesus. And I thought 8 months to 1.5 years waiting lists in the Netherlands were bad.
This is insane. If you can afford it, it might be worth traveling. NHS may not pay for care abroad, but a diagnosis without insurance shouldn't be more than a couple hundred USD at worst.
At least y’all don’t *have* to spent over $1k+ to get tested and diagnosed, even WITH good insurance in the US. Is that an option for you?
Took 4-5 years for me to get an appointment to see if i have adhd or autism and anything of the sort and i have a 45 min appt and instantly i was diagnosed with autsim adhd and dyspraxia this was a couple years ago i know the nhs is struggling so it might take longer now or others.
Also that your parents cared enough to notice that something wasn’t quite right. That’s not true for all of us.
My mom has ADHD, so she actually just wanted to know if I had it too. Same thing for my brother... Which gave... Less fortunate results... Like autism + ADHD + Intelligence deficiency (now diagnosed with this a year ago) and more. I'm glad I ONLY have ADHD.
I am on the waiting list for 3 years now and they just sent me a letter that I'll have to wait a bit longer. Meanwhile I lost 2 jobs and can't find a new one :(
You guys HAVE wait-lists? All I ever get is that they don't take new patients and to call back in 6 months.
Scheduled back in Feb of this year and my evaluations are finally coming up next month. I'm stoked.
Haha! Try waiting 5 years, and then they tell you that they actually forgot to put you on the list, so you have to go to the back of the queue :)
They took me off the list after 5 years because I changed my address...
If you’re in England please look into the ‘right to choose scheme’, in a nutshell it means that you have to be given an appointment within a certain number of weeks otherwise you choose a third party that has an NHS contract (I highly recommend ‘Healios’.)
I'll definitely try that, thanks! I'm worried the wait lists for those third parties won't be great either but hopefully it's an improvement
When I was passed to a third party in 2021 I think the wait time was 4-5 months. It’s not great but it’s also not 4 years. I wish you the best!
Who did you choose, may I ask?
I didn’t use the right to choose scheme, I only found out about it recently, I had been on the waiting list for 3 years and I received a letter from the NHS saying I could either wait another 2 years to be assessed by them or they could pass me to a third party. I was assessed by ‘Healios’, they have an NHS contract (which is why I was passed to them) and can be chosen using the right to choose scheme. I was uncomfortable at the thought of an online assessment, especially after reading that some online assessments only took an hour. However my assessment with Healios was broken into 2 parts each lasting over an hour (about 90 minutes.) They sent some things to fill out before hand from myself, my parents and my school (place of work if the school isn’t an option.) It felt very thorough and thankfully the person who conducted my assessment was a psychologist with experience in assessing ADHD (as current guidance says ‘any qualified person’ can assess ADHD, personally I’m uncomfortable with that.)
Walter White, PhD.
Same but Sweden (the healthcare system is falling apart here but the internet still thinks it's the best lol)
Damn I'm sorry to hear that. Is it because of bad politics? Seems like greed and misinformation will always be the downfall of strong nations
try travel to any country that doesn't have waiting list for months or years for example, my uncle who lives in Denmark had an appointment with the doctor that took him 4 months while when he came to visit my country it took only a few hours waiting
Wjat kind of saint land do you live in??? ðŸ˜
Iraq (I guess most 3rd world countries have small doctor appointments)
What happens when you go back to your home country and tell them some doctor in another country diagnosed you with ADHD so they gotta give you meds now? Would they actually take it as a valid diagnosis, cos that doesn't seem super likely tbh.
sorry I didn't clarify the topic my uncle was having some pain in his back so it didn't took him long to check the doc however for the adhd it depends on the doc himself some will only take one month appointment and some will take less or more time
This is me too
Hang in there
Thanks friend
!remindme 3 years and 11 months I will remind you
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You basically have to go private but so many people can't afford that
The catch there is that, if you go private, you have to either stay private or be referred to the NHS so your prescription's cheaper (or free if you're in Wales (or Scotland?)). GPs across the UK are now refusing shared care agreements (unless you're lucky), and RtC is only for England. So I'm now stuck on the NHS waiting list while still having to pay private prices for meds 😠I live in Wales so those are my only options. It sucks 😞
Welsh here too. Diagnosed 2 years ago after a 5 year wait. I've been on a waiting list for medicine for 2 years. Its a fucking disaster.
Vote labour.
Real talk though: will that help? I mean, I'll still do it. But the Lib Dems tend to be the "let's actually care about mental health" party.
Lib dems are a joke. It will stop the bleeding. Tory budgets are a cynical fantasy; just Faragist lies. NHS is crumbling bc the govt won’t fund it properly that’s the only reason. If people refuse to invest in social programs there will be no more programs that are wildly popular for a reason.
Starmer has been making pretty consistent noises about mental health being a priority and that he will actually fund it more rather than just talking about it. We'll see, but I'm cautiously optimistic that things will get somewhat better in the medium term.
Lib Dem’s don’t care about anything, last time they had a slither of power they showed thatÂ
I've been on a waiting list for 3 years so far in the USA. No sign of actually seeing someone any time soon, but when I finally do, I get to pay a shitload of money for the "privilege."
lol no reason to lie. My spouse was diagnosed and given medication within two months and had the option to go through a few different ADHD medications. Her ADHD medication is about $90 a month which is on the high end of medication but beats waiting years. For comparison she takes about three other prescriptions and I take one prescription and the rest of our medication is around $40 total so we pay around $130 for all of our prescriptions a month. I’ve never met anyone here in the US waiting years for ADHD medication even for the name brand. Just because you think the US healthcare sucks doesn’t mean you have to spread false information about it.
I'm glad it worked out for your spouse, but that does not make their experience universal. I live in a small town with very limited Healthcare options, and I have been on a waiting list to see a psychiatrist since August of 2021. If I were willing to travel several several hours to a major city, maybe I could get in sooner, but that's not really an option for me.
Go to psychiatrist for testing one time and after that you can do virtual appointments, after that you might get the option to have the prescription mailed but I wouldn’t see why a pharmacy wouldn’t have it. It isn’t that hard to make one trip to a psychiatrist. There’s a lot of options available to you. You also have a post made 70 days ago saying you live in upstate New York. Not sure how small of a town that is but I’m sure there’s something there for you.
In Italy it's 1 year. If they don't lose your certified email when transferring you, as they did with me, which added 8 months to it. Then they went on holiday and postponed my second appointment. Then they went in sick leave, and postponed my third. Then they went on holiday, and postponed my 4th. Then they kept my diagnosis hostage untill I got certified for not having any other learning disability (they will try to blame your symptoms on anything else). this I did privately because the waiting time was 13 months. Then they went into sick leave. I'm currently hoping to hear from them As for why they kept me hostage and refused the diagnosis, my psych invented a probable dyscalculia, despite being expressly told that math and stem were the only things I DIDN'T have trouble in. Apparently not showing hyperactivity in childhood was just such an unusual never seen before case she couldn't belive it was just adhd.
I got a referral from my GP for testing yesterday, and when I called the mental health clinic, they have no appointments, live or virtual, anywhere at anytime. Luckily, my job has a mental health access program and I was able to get an in-person appointment for tomorrow evening.
I wish I had the letter to prove it, but my wait time for an AuDHD assessment is 260 years. Deffo have it though. Riddled with it.
damn, that's awful! do you need to be diagnosed by a psychiatrist? Here in Canada I got diagnosed by my family doctor.
Oh really? I'm curious to know how that process goes as GPs here wouldn't be specialised in mental health to be able to pass a diagnosis. Here all they can do is a 'pre-screening' test, and if you hit the right markers you're then referred to a psychiatrist
yeah, so if its a simple case and you're an adult, a family doctor can handle it here. I've got no other psychological or neurological issues (that I know of lol), and the test he gave me came back very clearly indicating that I have ADHD. The test was a big stack of forms to take home and fill out. I did almost all of it the day I got them, and then procrastinated for 3 months or so with the last 2 pages. When I did finally turn it in, I returned the forms out of order. He considered that a point in favor of me having ADHD lol.
Also Canadian here. It varies like hell. I live on the West Coast, and I'm on a 2 year waiting list. My family doctor doesn't diagnose ADHD and there's only 1 adult clinic in the entire province. I wish I got diagnosed as a kid so bad
yep! in my first attempt I just gave up!
I'm on that 4 year waiting list also but I intend on paying the £600 to have a privet consultation.
I was so problematic I got diagnosed at 12 and it was through teacher referral. For some reason my experience with the NHS has always been substantially better than others
[удалено]
Your post/comment has been removed because it either contains, or is advocating for, misinformation. Betterhelp is a scam. They do not vet their therapists, overwork/underpay the ones they do hire, support the genocide in Palestine, and have sold users medical data to advertiser's including whether they would be susceptible to advertising for mental health related subjects.
Same. I should have tried to see one when I first thought I had it 3 years ago, but my parents told me I didn't have ADHD smh. Is there even a point in seeing one now?
My parents say I'm a hypochondriac because I think I've got it. Don't listen to them an get a diagnosis. At least then you can either get medication or therapy that will help you live the rest of your life if you do have it
Yeah good point. I think I've got it too, even though I haven't been properly diagnosed If I do have ADHD then I finally know what's been ruining my life lol
Glad I live in the US, where they drain your wallet instead of your time
We can drain our wallets in the UK too
I didn't know you need to go to a special place for it. I went to my psychiatrist, told her I think I have ADHD and she did an interview with me and my mother and she diagnosed me immidiately lol
In the exact same situation. I feel you. Had i not been made redundant in September of last year i'd have gone private by now even though i resent the need and the cost (i was maybe 2 or 3 months away from having a comfortable enough buffer to drop the £1500). I just want to move forward. But then whenever it is i can get a job i'll have to do other rebuilding first just to get back to zero.
Ugh yeah :/ I’m on the waiting list and it makes me feel pretty despondent at times that it’ll take years for me to get confirmation as to whether I actually do have ADHD and can get help for my symptoms with medication, or if I really am just some lazy person who’s just constantly ruining their own life.
can you go private? Can just speak for austria and germany but prices range from 100€ to 300€ - and you cut the waiting-time as this waiting time is the longest with psychologists and psychiatrists who work with general insurans(something like nhs), but the slots for working with public insurance are acutally rare (resulting in not enough public practicioners). Already my first month on medication saved so much adhd-tax that it would have been worth it, instead of waiting years.
Thanks for this. It's hard knowing what's wrong but it's like "you can't do anything about it for 2 yrs and then we'll tell you what you already know"
I'd sooner start a revolution and risk it all than suffer a 4 year waiting list.
When I approached my doctor at uni I was told the local service was a 5-year waitlist (definitely not happening seeing as I was on a 3-year course that was about to end) so I opted for Right To Choose (with Psychiatry-UK). A couple of blunders on my doctor's part and a year after getting added to the P-UK waitlist, I got diagnosed a few weeks ago over 2 sessions. Now we wait (potentially) another year to start titration because of the meds shortage but being diagnosed has taken a lot off of my shoulders.
Vote Labour then go to a private clinic for a diagnosis
If only I had £700-£1000 to spare!
Oh yeah fair point, I forgot how expensive they are lmao