I know you are asking about other prolapses but the heart valves are one thing to consider. I recently had an echo and ct scan, my cardiologist wanted to do a baseline because the doctor who diagnosed me 10+ years ago never looked into it. So some new research has come out about most people with EDS or connective tissue disorders have a mitral valve prolapse and are at risk for aortic aneurysm. I was told I have a slight mitral valve prolapse and my aorta looked fine. I have to go back in 3 years to follow up. I’m 41 years old. It might be wise to get a test at some point to keep an eye on it.
Yeah, I'm 32 and I recently was diagnosed with mild mitral valve prolapse. I didn't have it 5 years ago. I also have a hiatal hernia now, which is another type of prolapse. I seemingly also didn't have that when I last had an endoscopy ~7 years ago. So I went from no prolapses (that I know of) in my early 20s to two prolapses by my early thirties. Definitely worth monitoring more frequently than I did, since I don't know when in the past 5/7 years I developed these issues. I definitely have symptoms from both of them, but these tend to develop slowly over years, so it's impossible to pinpoint exactly when they started.
It really depends on the person and what other factors are contributing. Your connective tissue loosens naturally as you age, but it happens faster for us. The older you are in general, the more at risk you are. We can reduce the chance of prolapses a bit by keeping our pelvic floor and core as strong as possible, but there's so much that goes into it.
Inflammation can increase the risk of prolapses, so some infections can push your organs more. Pretty much any disorder that causes inflammation or degradation of tissue can do that, there's not really a specific age. If you went through pregnancy, you're so much more likely to get a prolapse.
The internet says people with EDS tend to get prolapses earlier than most people, some getting them in their late 20s, but there aren't really any definitive answers other than the fact that we're at higher risk earlier than other females. Well, if you are female
My mom and I have hEDS. i believe her first pregnancy went completely fine despite the fact that she had horrible endometriosis soon after.
She had a pretty significant uterine prolapse when I was born a few years later, when my mom was 30. She is now 53 and has not had organ prolapses since then, so if you are female pregnancy is definitely a risk factor.
40 when I got my prolapse diagnosed. No pregnancy. I suspect it started earlier.
I’d recommend every woman with EDS see a pelvic physio. See how things are and get some education about pelvic health and what to keep an eye on and strengthen even if everything is fine.
I recently found out the feeling of needing to stand still after using the bathroom, is the feeling of prolapse. I have to stand still to let it go back to where it belongs
Minor Bladder prolapse at 37. Not enough to need surgery but enough to make me constantly paranoid about going to the bathroom all the time so i don’t have an accident. Kegels recommend but that didn’t help.
I got my first as a toddler after getting giardia from a public pool
I know you are asking about other prolapses but the heart valves are one thing to consider. I recently had an echo and ct scan, my cardiologist wanted to do a baseline because the doctor who diagnosed me 10+ years ago never looked into it. So some new research has come out about most people with EDS or connective tissue disorders have a mitral valve prolapse and are at risk for aortic aneurysm. I was told I have a slight mitral valve prolapse and my aorta looked fine. I have to go back in 3 years to follow up. I’m 41 years old. It might be wise to get a test at some point to keep an eye on it.
Yeah, I'm 32 and I recently was diagnosed with mild mitral valve prolapse. I didn't have it 5 years ago. I also have a hiatal hernia now, which is another type of prolapse. I seemingly also didn't have that when I last had an endoscopy ~7 years ago. So I went from no prolapses (that I know of) in my early 20s to two prolapses by my early thirties. Definitely worth monitoring more frequently than I did, since I don't know when in the past 5/7 years I developed these issues. I definitely have symptoms from both of them, but these tend to develop slowly over years, so it's impossible to pinpoint exactly when they started.
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I got checked like 2 weeks ago and my optic nerve is out if place. It was determined abnormal but not an issue.
It really depends on the person and what other factors are contributing. Your connective tissue loosens naturally as you age, but it happens faster for us. The older you are in general, the more at risk you are. We can reduce the chance of prolapses a bit by keeping our pelvic floor and core as strong as possible, but there's so much that goes into it. Inflammation can increase the risk of prolapses, so some infections can push your organs more. Pretty much any disorder that causes inflammation or degradation of tissue can do that, there's not really a specific age. If you went through pregnancy, you're so much more likely to get a prolapse. The internet says people with EDS tend to get prolapses earlier than most people, some getting them in their late 20s, but there aren't really any definitive answers other than the fact that we're at higher risk earlier than other females. Well, if you are female
My mom and I have hEDS. i believe her first pregnancy went completely fine despite the fact that she had horrible endometriosis soon after. She had a pretty significant uterine prolapse when I was born a few years later, when my mom was 30. She is now 53 and has not had organ prolapses since then, so if you are female pregnancy is definitely a risk factor.
40 when I got my prolapse diagnosed. No pregnancy. I suspect it started earlier. I’d recommend every woman with EDS see a pelvic physio. See how things are and get some education about pelvic health and what to keep an eye on and strengthen even if everything is fine.
I was 25 for my first.
I recently found out the feeling of needing to stand still after using the bathroom, is the feeling of prolapse. I have to stand still to let it go back to where it belongs
Heavily dependent on the person, their lifestyle, and severity of EDS
40
Minor Bladder prolapse at 37. Not enough to need surgery but enough to make me constantly paranoid about going to the bathroom all the time so i don’t have an accident. Kegels recommend but that didn’t help.