Yes I was semi bedbound for a little under three months and my doctors were weird about it. And even after that I had to rest a lot but I was down to 130bpm walking around so I dealt with it. It didn’t help that being inactive seemed to make me feel weak faster. Accommodations like shower chairs and sitting while cooking helped a lot.
It’s never been worth pushing myself personally but I had to find a balance. Someone on here actually suggested I used a rocking chair or a regular chair to do small exercises because I was having trouble just walking to the bathroom, bending over, grabbing dishes above my head etc but I was getting antsy by month two. My body didn’t respond well to beta blockers but also didn’t respond well to being off of them so I feel your pain. Even now if I rest too long it takes longer to recover. Go slow and listen to your body. Some of us just take a little longer to recover or experience this disease differently.
Sorry you’re going thru this. Have you seen a cardiologist for your high heart rate?
I was extremely weak when I was first diagnosed. My endo told me that Graves can affect your muscle mass. I was also on a high dose of propranolol initially while my levels were getting stable and I hated it. I was so dizzy that I couldn’t drive and I felt totally exhausted from it. It helped with my HR but I felt so weak.
Lowering the dose of propranolol did raise my heart rate for a few days but it evened out. it takes time for your body to adjust to being active again. Having a high heart rate can be scary and the anxiety from it can raise it even more. Hope you feel better soon. <3
You got to get up & get moving either way. You are probably experiencing orthostatic intolerance due to becoming deconditioned due to being recumbent way too often.
I was sort of bedbound but for other reasons. I lost a lot of muscle mass due to graves, to the point where I had constant chronic pain from just moving my body. Took a long time and a lot of physiotherapy to get back to a healthy point. My heart rate was also really high for at least a year maybe 2 after RAI, before it eventually evened out.
Your heart rate problem may be related to muscle loss - less muscle means more effort to move, higher heart rate. I would definitely try to speak to a cardiologist or other heart specialist because heart stuff is always very delicate, and if your endo is telling you to stop taking heart meds you should probably speak to a cardio about it before doing that.
Yeah, my endocrinologist also told me to stop taking my beta blockers prematurely, not even mentioning that it's dangerous to stop without titrating( slowly and gradually lowering the dose). While I did slowly reduce the dose, it was too soon and I had to go back on a low dose. I also am incredibly tired all the time, and while I regularly moderately exercise with what little energy I have, I have to be very careful not to overdo it. I also had muscle deterioration from suffering undiagnosed for a very long time. I've only been diagnosed and treated since the summer, my doctor says it's normal to still be exhausted. It will take time.
Yes, I’ve been bedbound for a few weeks. But you have to know that I was born with a severe muscle disease, so I was coming from a very different level in terms of muscle strength. The good news is even with my pre-existing condition I made it back to being up and in my wheelchair for almost the entire day .
I was completely down for 6 months until my TT. I'm almost 3 months post op and I can finally do "regular" stuff like laundry, dishes, ect but I only work 6hrs/week outside of the home. I generally feel much better but the energy comes in spurts and don't last long every time. It's literally a day-by-day thing for me. I definitely recommend seeing a cardiologist for your heart rate.
Yes I was semi bedbound for a little under three months and my doctors were weird about it. And even after that I had to rest a lot but I was down to 130bpm walking around so I dealt with it. It didn’t help that being inactive seemed to make me feel weak faster. Accommodations like shower chairs and sitting while cooking helped a lot. It’s never been worth pushing myself personally but I had to find a balance. Someone on here actually suggested I used a rocking chair or a regular chair to do small exercises because I was having trouble just walking to the bathroom, bending over, grabbing dishes above my head etc but I was getting antsy by month two. My body didn’t respond well to beta blockers but also didn’t respond well to being off of them so I feel your pain. Even now if I rest too long it takes longer to recover. Go slow and listen to your body. Some of us just take a little longer to recover or experience this disease differently.
Sorry you’re going thru this. Have you seen a cardiologist for your high heart rate? I was extremely weak when I was first diagnosed. My endo told me that Graves can affect your muscle mass. I was also on a high dose of propranolol initially while my levels were getting stable and I hated it. I was so dizzy that I couldn’t drive and I felt totally exhausted from it. It helped with my HR but I felt so weak. Lowering the dose of propranolol did raise my heart rate for a few days but it evened out. it takes time for your body to adjust to being active again. Having a high heart rate can be scary and the anxiety from it can raise it even more. Hope you feel better soon. <3
Is it normal to have this high heart rate?
You got to get up & get moving either way. You are probably experiencing orthostatic intolerance due to becoming deconditioned due to being recumbent way too often.
I was sort of bedbound but for other reasons. I lost a lot of muscle mass due to graves, to the point where I had constant chronic pain from just moving my body. Took a long time and a lot of physiotherapy to get back to a healthy point. My heart rate was also really high for at least a year maybe 2 after RAI, before it eventually evened out. Your heart rate problem may be related to muscle loss - less muscle means more effort to move, higher heart rate. I would definitely try to speak to a cardiologist or other heart specialist because heart stuff is always very delicate, and if your endo is telling you to stop taking heart meds you should probably speak to a cardio about it before doing that.
Yeah, my endocrinologist also told me to stop taking my beta blockers prematurely, not even mentioning that it's dangerous to stop without titrating( slowly and gradually lowering the dose). While I did slowly reduce the dose, it was too soon and I had to go back on a low dose. I also am incredibly tired all the time, and while I regularly moderately exercise with what little energy I have, I have to be very careful not to overdo it. I also had muscle deterioration from suffering undiagnosed for a very long time. I've only been diagnosed and treated since the summer, my doctor says it's normal to still be exhausted. It will take time.
Yes, I’ve been bedbound for a few weeks. But you have to know that I was born with a severe muscle disease, so I was coming from a very different level in terms of muscle strength. The good news is even with my pre-existing condition I made it back to being up and in my wheelchair for almost the entire day .
Maybe get your iron and B-12 levels checked?
Heart pills help within a few days for me.
I was completely down for 6 months until my TT. I'm almost 3 months post op and I can finally do "regular" stuff like laundry, dishes, ect but I only work 6hrs/week outside of the home. I generally feel much better but the energy comes in spurts and don't last long every time. It's literally a day-by-day thing for me. I definitely recommend seeing a cardiologist for your heart rate.